Infographic: State-by-state breakdown of opioid regulations

1116_opioidsbystate_infographic

Comments

Add a comment

Add a comment

Required fields are marked *

Your email address will not be published.

My son is in the same situation. He tried everything else the pain center suggested but they won’t give him enough medication to even get him to a 7. CA has laws that actually state people have the right to have severe pain treated. Why do those who actually need it have to suffer. I don’t know where to turn and it is agonizing to watch my son live in his recliner 24/7. He started working at age 15, put himself through USC Marshall School of Business, enjoyed working until he had crushed nerves. Are there lawyers out there who can help us fight? I just don’t know. My husband and I are both disabled or I would be at the state capital daily with a sign. I will help all of us in any way I can. I am going to write 60 minutes to possibly do show on the forgotten patients, CNN etc to see if someone would be willing to bring this to lawmakers attention. I do have sympathy for those who are addicts but leaving those in pain to suffer is not a viable solution.
Name: 
Carolyn Woolman
Email: 
cjwoolman@hotmail.com
I've been keeping up with the CDC website on the opioid restrictions and limits. The CDC just recently posted an article stating that their original statistics on opioid overdoses was flawed. Plrase go to their website for updated info on this. We all need to get together on this, try to stop what's happening to all of us because of these ridiculous restrictions. First of all the statistics are flawed. Secondly chronic pain patients are being slowly tortured with these forced dosage restrictions. Third we have rights. We are not drug abusers!
Name: 
Bonnie Stanley
Email: 
bstanley811@gmail.com
I definitely agree. We need to file a case . My name Rose my email is Crose8539@gmail.com phone is 2696016506. I suffer everyday.
Name: 
Rose
Email: 
Crose8539@gmail.com
I have severe lumbar & I think severe cervicle also arthritis......Sjogrens... Fibromyalgia (a real killer)......severe Osteoporosis ( which NO ONE has addressed. I also have sarcoidosis ( which I ignore, because I don’t feel anything from it)! all of these were confirmed by more than one doctor and I went out of town for a different diagnosis. I AM DEPENDENT on opioids...NOT ADDICTIVE. BTW: I think your primary doctor... who SHOULD know you best...should be in charge of you pain meds. With your PCP and the computer...it appears very hard to note who should get and those that get None. Whew , I needed to vent
Name: 
Liz gregg
Email: 
Cookiegregg@icloud.com
I'll be dead in about two weeks when my insurance has threatened to stop paying for my analgesics [opioids]. I have an incurable rare very painful bone disease- been on a high dose of opioids [same dose taken 3x's daily for over 15 yrs], which I have NEVER abused. My body is dependent-to suddenly stop these meds without even offering me an alternative is premeditated murder. I cannot afford the over $1,000/mo. to pay for these meds- I've never been in jail or prison and would not even know how to try to save my life by buying it on the streets. Nor would I want that to be my legacy, I think since it is worker's comp. I should try to make it to their office and allow them to watch me die as I go through the withdrawals. My husband of 40 yrs is terrified. He will not be able to handle watching my extremely painful and undignified death.
Name: 
notworthsaving
Email: 
psalm91john15@gmail.com
I have severe lumbar & I think severe cervicle also arthritis......Sjogrens... Fibromyalgia (a real killer)......severe Osteoporosis ( which NO ONE has addressed. I also have sarcoidosis ( which I ignore, because I don’t feel anything from it)! all of these were confirmed by more than one doctor and I went out of town for a different diagnosis. I AM DEPENDENT on opioids...NOT ADDICTIVE. BTW: I think your primary doctor... who SHOULD know you best...should be in charge of you pain meds. With your PCP and the computer...it appears very hard to note who should get and those that get None. Whew , I needed to vent
Name: 
Liz gregg
Email: 
Cookiegregg@icloud.com
I have heard that the new "pain management" is corruptly being forced upon doctors and pushed on to their patients!! Suboxone, Subutex and methadone!!! I refuse to take that horse shit!!!! It's for the addict's! not the ones that contribute each and every day to society as best they can!!!! We are stuck in a he on this!! Unless or until God interferes and judges them to hell for the judgment and empowerment they have slammed down on the innocent, good, hard working, family loving, contributor's to society and human Americans!!!
Name: 
Rob
Email: 
robbymtt18@gmail.com
Methadone has been the best medicine i have been on for pain control and i have no high feeling from it ,it's actually given the best quality of life I've had since the ive had chronic pain legs,neck,and back but i understand not everyone is the same what works for me may not for you,but what our government is doing now by taking away a med.that works and can afford is going to have a unbearable effect on my quality of life and it's barbaric to do to a loving kind family man or anyone else who has to go through this ,i pray that God will INTERVENE so people who have these horrible pains and poor quality of life will not be so negatively affected, my hopes and prayers for this will effect
Name: 
Dwayne Dagostino
Email: 
dagostino115@gmail.com
I feel the same way, no news media will even hear our side, no lawyers, no one. All the drs are mailed new pamphlets every day to know exactly what to say to every single thing any of us have to say. Their all like one great big brainwashed hive mind. And the way their driving this bus, plastering it " the opioid crisis" all over every news station ( all day), commercials, talk shows, news papers, pamphlets everywhere and even posters in the walls. How can they claim this is about the people who abuse drugs then turn around and start separating all the legitimate patients into categories now? The one that's most discriminating of all is us " the older generation" just look at how their making us look! They are brainwashing the nation with all this and from every angle possible. When our governor here in Michigan and his lutenent governor got on mainstream media here in Detroit this past winter to discuss all these new laws and efforts their going to be making the did say the following... " these changes ARE NOT meant to affect three groups of people #1 Cancer Patients #2 Palliative care Patients ( that'd be me) #3 Chronic pain patients He also VERY CLEARLY STATED ITS UP TO YOUR DRS IF THEY THINK YOU NEED PAIN (OPIOID) MEDUCATION OR NOT!" AT NO TIME DID THEY SAY THEY ARE MAKING DRS LOWER OR STOP MEDICATION FOR THOSE WHO TRULY NEED IT PERIOD. OK SO HERES MY QUESTION. FIRST THOUGH ILL TELL YOU I AM PALIATIVE CARE STATIS, I AM NOT JUST CHRONIC PAIN, I AM AM CRITICALLY ILL WITH SEVERE WIDESPREAD ISSUES THROUGHOUT MY ENTIRE BODY. I WILL EXPLAIN A BIT FARTHER ON. SO I WAS ON A LOW DOSE , ONE TABLET EVERY FOUR HOURS. FOR WELL OVER 20 YEARS. THEN ALL OF A SUDDEN MY DR CUT MY DAIKY AMOUNT HY 1/3! NOT EVEN GIVING MY BODY TIME TO READJUST. BUT HIS EXACT WORDS WERE " HE HAS TO DO IT. HE HAS NO CHOUCE, THE GOVERNMENT SAYS HE HAS TO"! BUT THE GOVERNMENT DID NOT SAY THAT, THEY SAID, AND I QUOTE " ITS UP TO THE DR TO GIVE THEIR PATIENTS WHAT THEY THINK THEIR PATIENTS NEED!" UNQUOTE SO HE'D BEEN GIVING ME THE FIRST AMOUNT FOR SOKE 20 YEARS THEN ALL OF A SUDDEN DROPPING THEM BY 1/3 WHAT BECAUSE HE DOESNT THINK I NEED THEM ALL OF A SUDDEN OR WAS HE GIVING ME MEDICATION ALL THOSE YEARS I DIDNT REALLY NEED? DO YOU SEE WHAT IM SAYING HERE? DOC YOU CANT HAVE IT BOT WAYS! HE SAYS " THE GOVERNMENT MADE HIM FO IT" WHICH IS CLEARLY NOT TRUE. THE GOVERNMENT SAID " DRS ARE FREE TO PRESCRIBE TO PATIENTS HE /SHE THINKS THEY NEED THEM" FOR 20 YEARS HE GAVE ME MEDICATION ( HE MUSTVE THOUGHT I NEEDED) BUT THEN ALL OF A SUDDEN TOOJ IT AWAY. SO IN REALITY THAT IS SAYING THE DR WAS GIVING ME THIS MEDICATION HE DIDNT THINK I NEEDED FOR SONE 20 YEARS! JUST THINK ON THAT A FEW MINUTES FOLKS, HOPEFULLY IT WILL SINK IN. Now if I may share my health issues. Well over ten years ago I was told I'd be very lucky to survive another five years. Maybe that's my curse though, where taking the opioids goes that is. I swear to God the fact that I have survived I owe at least in part TO the opioids. That's because they've enabled an otherwise bed bound patient the ability to get out of bed, get up and function. And function in ways way above my limitations which has allowed me to build muscle rather than laying around facing a downhill spiral of muscle waisting as well as slowly evolving heart and other organ failure from lack of activity etc. But my hearts remained good and strong. I've been able to get up, grocery shop and come home and plan and prepare good healthy meals . And not just for myself but my entire fanlmily. It is due in whole to the pain relief, thus also stress relief and in turn a real POSSITIVE out look each day. Folks I have Hereditary Hemorrhagic Telangiectasia as does all five of ky kids, two of our three grandkids and my elderly and also otherwise very sick and bed and wheel chair confined elderly mother. I am also thee #1 go to person in our entire family for this disease as it is highly complex and highly misunderstood especially by drs and health care workers. Some of you may have some idea what its like Hey I'll come back to finish later. Health problems getting the best of me, I just ly down.
Name: 
Terilyn Moulton
Email: 
Teeteet969@aol.com
I didn't get to finish my comment from yesterday, pain took over. I left off going into my own personal story and health problems, and believe it was right where I began saying .... I have hereditary hemorrhagic telangiectasia? I do in fact have a massive amount of the "avm's, ( short for arteriovenous malformations). And I will explain more on what these are a bit later. But I do have them throughout my body, including my entire G.I. tract, at least one in my brain, ( its in my cerebellum and dangerously close to my brain stem itself making any treatment of it impossible. The only reason a Dr should even consider doing anything with this one would be if and when it does actually start leaking/bleeding and or rupturing. In other words its a tremendous risk and the benefit of of doing anything to it must far far out weigh its enormous risk). Then to date I've had, or currently have at least 12 pulmonary avms! I did have the first fivev of them EMBOLIZED way back in 1999 , how ever due to drs mistakes they caused me to have a pretty serious pulmonary infarction. A pulmonary infarction is like a heart attack, hence the term " myocardial infarction", however it is lung tissue that dies and is lost rather than heart. These first five pavms were huge I mean huge and all in a cluster coming strait off the main blood vessels coming out of the heart into my left lung. Let me back up just a bit though as I feel this is also very important. I'd been misdiagnosed this disease my entire life by at least 30 years and as many drs. (30!). Although I'd gone to one after the other in a desperate and frantic search for answers to the horrible attacks and symptoms I'd had, especially during pregnancies when they were doubling in frequency and intensity with each and every pregnancy. From the time I was a little girl drs kept concluding my symptoms were all in my mind, some kind of warped bid for attention and referencing I'd been a victim of child abuse, ( every single kind I might add and at the mercy of my own mother and sick step father and all also while I was in the grips of this disease that whole time). So drs believed my problems were all psychosomatic of coarse. Even though I'd beg and plead with them it wasn't that, how on earth could this cause me to loose my vision, have an entire side of my body go numb then get a headache so severe I'd literally loose consciousness for 24-48 hours at times even. I mean any Dr in their right mind should've seen something was clearly wrong. And out of all of them not one ever run any tests what so ever and still sent me right back home to the people they new were severely abusing me and starving me. Anyway a few years down the road and now their claiming these are just migraine triggered by hormones and trying me on all kinds of different medications that not only didn't help but often made things a 1000 times worse. I'd try and try to tell them they'd just tell me to keep taking them and otherwise blow me off. Down the road a little more and now I'm pregnant and things are getting worse than ever way way worse. And I'm having more new symptoms, massive nose bleeds was ( just) one of many. Now drs are blaming it on pregnancy! And telling me ALL THESE THINGS I'm having ARE COMPLETELY NORMAL IN PREGNANCY! GEES I HONESTLY THOUGHT I WAS A COMPLETE WIMP, I COULDNT UNDERSTAND how all these other pregnant woman were all so happy and energetic and actually started believing there was sonething wrong with me mentally on one hand, but come on even I new the pregnacy had to be what was exacerbating my problems, didn't it? As you can see I was so confused by now. But I suffered unimaginable amounts of pain ( way over 10) and sickness every mont of every single day all nine months, but I/ we wanted our children, I'd graduated college, bought a house everything so in my mind I was being a good Mon who'd push through anything to have a family. But again in the back of my mind I did think pregnancy was making whatever I had worse but it certainly was not the cause, remember these go all the way back to when I was a baby. I have memories at least as far back as age three of being sick and in severe severe pain all through my body my entire life. All I'd ever known was suffering! And again I'm being experimented on with all those medications, ( antidepressants and other medications meant for mental issues, beta blockers and blood pressure and heart medications, anti seizure medications, every new migraine prevention that came out ( all promising this one is it, the one that's finally going to set all patients free that in another year there's commercials for people to sue for damages they've caused. I mean you name it they forced all these on me, never giving me anything to ease any of my pain and suffering. In fact I didn't even know what pain medications were, yet often times got accused of faking my sickness for being a drug seeker, even as young as 12 years old! And having never one time asked for drugs EVER! IN Fact even as a teenager the once or twice I'd ever tried alcohol or pot they both caused severe reactions, which I will also explain more on this later as well. But they did all this to me too. They'd send me around and around the gamut of all these drugs that always made things a lot worse! Then when this didn't work they'd send me to yet another specialist who'd start the whole thing all over again, trying all new meds they'd say. But in reality they all have the exact same ingredients but just different names. I've been forced around that cycle probably a hundred times in my life and its been a living hell, pure torture. And now they are trying to do this same thing all over again Ad I'm PALIATIVE care now! But I'm going to explain why that is also here shortly. For now though let's just say " I wasn't supposed to have a lot of those things ( meds), how they are contraindicating with my disease, in fact many have actual black box warnings on them for patients with HHT especially those who have brain avms. But how they are STILL trying to force all this on me AGAIN in my present condition and all while FULLY knowing so many of these can and will like kill me! All for the sake of this ( so-called) opioid crisis and the government is making them do it! Finally though in 1999 they finally found that huge culprit, a great big cluster of these avms in my lungs that were indeed literally rupturing NOW! I was 7&1/2 months pregnant with our fifth child. I'd just had three babies, so four pregnancies in less than six years all back to back and all riddled with severe severe complications, and another long chapter in my story. Anyway they found them finally and now all of a sudden the drs couldn't apologize enough!! They had to immediately deliver my son, it was a very critical and very delicate way they had to get him out without rupturing this huge cluster of these now already leaky avms on the very verge of rupture. This alone is also another very long chapter in my story. For now though I'll just say they got the baby out but now he's in a fight fir his life on a ventilator, while I was supposed to be whisked away for an immediate emergency embolization on my lung. Our son was having quite a few problems with his lungs and I was on complete bed rest waiting nearly two months for insurance red tape and medical politics to finally give the green light for this surgery I needed to save my life. At that point though, as soon as the baby was born my avms did go down in size a little and weren't leaking. You see PAVM increase in size with ( each) pregnancy because pregnancy leads to about a 60% increase in blood volume. Think of a balloon that's being over filled, but just because you let the air out the rubber is still stretched out of shape and doesn't return to its actual size or texture. Its still all stretched out of shape and thinned out but now just deflated upon delivery of the baby. Kind of just the same way we are left with these flabby bellies, if you will. Now picture this happening over and over ( all four pregnancies back to back like that). By that fourth and final pregnancy this cluster of PAVM ( which we now new were there all along going all the way back to my childhood) were being over filled each time thinning out the walls of all five avms more and more and by the 7 th month of that final pregnancy they were completely thinned out and now leaking and on the verge of a complete blow out/rupture. The ONLY thing that mattered to me AT ALL though was now my tiny little premature baby laying up there literally fighting for his life! And what was even worse was I was very weak and ordered on strict bed rest. Well I DIDNT GIVE A darn, there was NO way you were keeping me from getting to that hospital nursery EVERYDAY and holding my son in my arms praying my heart out non stop. I was absolutely terrified in a way no words can EVER describe. As I said though that whole ordeal is yet another very long chapter in my story and it has soo many more issues, twists and turns, I do hope to share with the world one day. So finally after waiting ( like that), in that state and on the brink of death every second (24/7), they, insurance, the drs etc etc, finally got the embolization set up and I went in ( I'd waited over two months now). So they did this embolization and it took them more than three times the amount of time they said it would, trust me this is very significant. Everything seemed to go well and I'd be able to go home in 24 hours and that would be that, I'd be all cure. Keep in mind though they still never informed me about the actual underlying genetic disease ( HHT) THAT was the cause for these PAVMS or that it could be passed onto my kids or anything. At that point I'd only been told just about the PAVMs and they very clearly made it all sound like once they got these I'd be cured and free to go live my life. They also informed me that all those ( so called migraines) I'd been having all those years were NOT actual migraines after all but rather a condition called T.I.A. attacks ( I'll explain more on this a bit later also), and that this embolization will also CURE THOSE AS WELL!!! oh my God hallelujah praise God praise God in the highest you cannot imagine how happy I was to hear that!!!! So later that first night post the operation/embolization they got me up on my feet ( your not allowed to move at all for like 13 Hours after a pulmonary EMBOLIZATION) to go to the bathroom when, THEE MOST TERRIFYING THING EVER HAPPENED. Once again an entire side of my body went numb, but this was different it was like my entire lag turned to some kind of stone or something, I got extremely dizzy and passed out completely. The next thing I recall was waking up for a brief second being wheeled somewhere at like lightening speed, then the next time I was awake again I was in an MRI and the next time back in my hospital bed with a Dr shinning a light into eky eye and repeatedly calling my name. I opened my eyes and there was my neurologist and several more Dr's all around me. They were saying I'd given them quite a scare but all my test were OK and I'd be OK to go the following morning after just one more night for observation just to be on the safe side. Morning came and I got to go thinking finally A LIFETIME of bad stuff, of unimaginable suffering from the day I was born 24/7_ 365 until now when I'd just turned 30 years old that year, I lt was now finally behind me and I could go and be the mother I'd always dreamt of being and loved being so much! I cannot ever find words that will express just how happy I was, or so I'd thought. Little did I know it what merely only the beginning of the kind of suffering that will now lay ahead!!! Boy was I dead dead dead wrong!! Again I need to stop for now, my pain is rising, but I really hope to be able to come back and finish telling my story if you will please allow me to. Yes it is long but in the end you will be able to understand why it was necessary to tell so much of it and I assure you it will all show its relevance to this cause, what the opioid crisis is doing to the truly ligitimate patients with truly ligitimate reasons for needing these medications and what all these new regulations are doing to people and how horrific its making us all suffer. I can all but promise you my story WILL speak volumes that may serve to help us all.
Name: 
Terilyn Moulton
Email: 
Teeteet969@aol.com
i ahree with linda Maloney We could b sisters I hav never abused pain meds but after 2 halaciousesurgerys on spine ,broken bolts 6 herniayed discs hip grafting for spacers and hip thats bone on bone and immune problem fibermyalga Im off fentimal but i only get 3 oxys daily Im scarred to death of heroin but in indiana if u truly need pain meds and u have to b tortlured U WILL DO ANYTJING TO GET RELIEF iv just foumd out 2 of my 65 yr old friends ate going to Gary Ind Scarted of beimg robbed, shot, raped Its horrific what our gov is doing
Name: 
cheryl
Email: 
cherylparry218@gmail.com
I have been reading all these horric stories in regards to the pain killers being denied to chronic pain patients. I fall in this catatogory. My pain medication has been reduced to a third of what it use to be. I’m in horrible pain and withdrawal symptoms I am now disabled and can’t work. In the current position I’m in, was told to go the ER. I’ve considered suicide too, but I have children who love me and need me and I love and need them as well. Eventually, I will have to face reality, I won’t be able to care for them, or myself. And suicide will become my only solution. This situation is disgusting and shameful. Maria Wakili BSN, RN
Name: 
Maria Wakili
Email: 
Mariewaki@icloud.com
I too live with chronic ,severe pain from fibro & severe, advanced dds. I have been cut down 60mg since mid term elections came into play for votes. I could care less if 2 junkies died on a expressway in fl. They were guilty of EATING FENTanyl Patches. Really ? It is just two less junkies I have to worry about robbing or killing me. Now the reality is I will not be able to have surgery on my back because there is no pain control. THE GOVERMENT needs to stay out of it.
Name: 
lynn
Email: 
sbbogg@gmail.com
I think that Medicare has finally found a way to keep funding the Aging population. Take away our pain medications for diseases like Ms and neuropathy or fibromyalgia. Those of us who do not die withdrawl will die in order to stop the suffering
Name: 
Lois Yanke
Email: 
Loisyanke7@gal.com
So well said.Abusing addicts & those who only go to get Rxs to sell(drug dealers)should be punished.Why does our government allow this to go on.I too have been bedridden for the past 2 years.Never did I abuse prescribed medication & it allowed me to continue working, taking care of my home & yard.68 yrs.old & my life is unbearable.When a hard working honest person finds their self unable to do,or be productive,one can only pray to leave this earth.
Name: 
Mel
Email: 
Melcav602@att.net
You are so right. We, the people who suffer from chronic pain are being punished for the misuse of others. I am turning 61 this Feburary and have been on Oxycotin for over 10 years. I was born with curvature of the spine and have suffered with back pain since my late twenties. I am not a person that ever thought I would take any heavy medications. I tried everything I could to avoid it. But then as I got older and started having children my pain became more and more unbearable. No longer could I exercise and stretch to reduce the pain, back injections were no longer enough. Then I started blowing discs. First was my upper neck area, L6 L7 and my arm and fingers became numb and hurt to use. The neurosurgeon rushed me in the next day for my first bone fusion. Needless to say it was all down hill from there. I had two more neck surgeries and my back pain was no longer lower back but now my total back. After seeing all the best surgeons, even traveling out of town to be seen and operated on by some of the world renowned surgeons, I was informed that because of the advanced curvature of my spine no one would dare operate. I then after countless physical therapies resigned myself to realize that I had tried everything else and would now have to try medications. At first it was just a couple Norco a day. Until my body built up a resistance and I had to take more to get the same results. I saw a few pain management clinic doctors and tried more injections for which I received no results are benefits, laser therapy not cover by my insurance and every new hope that with any luck might help ease my pain (to no avail ). During this trying time I was diagnosis with advance cervical cancer. At this time my doctors reassured me to try Oxycotin. It was a wonderful pain reliever that was non addicting. Big joke, it was a wonderful help with my pain, but as they later realized very addicting. I have to say though it is the only medication to enable me to get out of bed, clean my house, walk my dogs do things with my now retired husband and enjoy spending the day with my grandson. Back to cancer had a compete hysterectomy and then a few years later cancer was found in my upper jaw and they removed a huge piece and three good teeth. Started seeing Dr Lee a pain specialist. At that time my pain had become so bad it felt as if my back was being split in two. I would have to lie down and not move, heavy muscle spams and burning nerve pain. I am now taking 240 mg of oxycotin a day. What people dont understand is your body builds up a tolerants and what use to work no longer does. To make a long story short after people began abusing and dying from the drug, I asked to start reducing the m.grams I was taking. I wasnt getting high from my medication I was bearly getting by. I broke my pelvis in three places and went on to get a horrible hip break and was rushed into surgery. Two pins and six bolts later I now live with bad hip pain and one leg shorten by 3/4 inch. It happen while walking my dog, I tripped. Was informed I now have brittle bones from not taking enough hormones after my hysterectomy. Too much you get cancer too little you get brittle bones!! I just can not win. My pain doctor is scared to prescribe Oxycotin now to any of his patients, it was okay when he was making big money for himself and the drug companies. First he said I could stay on two 20 mgs a day because he knew I was in so much pain and I was a responsible medication taker. Then so the government wouldn't find out how many patients he had on opiates, he said to me the last visit I know how bad your hurting and that I should talk to my regular doctor about giving me the medication because he is afraid too. So I am spending a lot of down time in bed twisting in pain because he only prescribed me one 10 mg of Oxycotin and 5 mgs of oxycodine. To end all together next month. I am so scared what do I do when the pains so bad I think about ending it. I have had pain medication, luckily when times get that bad. What in Gods name do I do with no pain medication at all. I am scared I might head out to the streets for HEROIN to have something anything to take care of my pain. I am still young and think I have suffered enough. More people are going to keep dying. Like Mothers and fathers, aunts and uncles, and really sad to say our veterans that gave so much to our country. Only to have the government and rich worried doctors turn their back on all of us. What about the oath to do no harm. I fighting mad and think we the chronic pain sufferers of America, should challenge the treatment we are now being given. It's not right in one sentence to say I know you need the medication but I not going to give it to you. It doesn't have to be pills just cure us. What do you think, write back. Vazcheryl33@gmail.com Thanks for listening.
Name: 
Cheryl Vaz
Email: 
vazcheryl33@gmail.com
I'm a 45yr male who is a recovering heroin and cocaine addict since 2010....Ive Herniated Disc L4 L5 S1 w/Spinal Stenosis, Accelerated Degenerative Disc Disease, Sciatica et. I became addicted to opioids only after being prescribed oxycontin 80mg 4x A day w/30mg Roxicet 4x A day for break through plus 2mg Xanax 3x A day to relax.. Lol... After I became addicted I began Dr. Shopping which was Extremely easy in 1990 Ft. Lauderdale Florida became NO Regulations on Pill Count... I then began experimenting w/Duragesic Fentanyl by Jansen Pharma.. For those who don't know that what the Original Patch, see through so the 'Good Stuff' was visibly accessible and easy to manipulate into a heavy gauge 3cc syringe. Well at first I just experimented eating it putting it under my tongue, swallowing et. but then someone introduced me to the 'Spike' & that was all she wrote.... 25yrs and 5 FL. prison bids I'm on methadone maintenance in NYC... I also use methadone for pain management because for me it just makes sense, plus it works and lasts longer than anything else I've ever done.. Besides that I only take Gabapentin, Xanax, Adderall and Abilify which keeps me grounded and productive... And that's what I wanted to talk about. My Mom suffers from Fibromyalgia and her regemine is Adderall 15mg 1x a Day.. "Fibro Fog" Gabapentin 600mg 3x a day and Medical Marijuana or Pure THC oil 100%
Name: 
Michael Gale
Email: 
72mike@bk.ru
You are exactly right. It is about population control. And a way to solve the social security problem. But they aren't realising that more people will be filing for disability because they have not only taken our quality of life away. But the pain is so excrutiating that now people that were able to work before now cant. And those with chronic pain that commit suicide their spouses and or children can file social security widower benifits. Their is now a demand for people to work jobs. But they are having a hard time finding people cause they now can't work because the pain and they are bound to their bed now. They are doing more for the addicts then they are for us with chronic pain. And the success rate if they go into treatment is very low. Relapsing is extremely high. I am 56 and these are suppose to be my golden years. Yea right. The government needs to stop lying to the American people or we need to educate them. This is not an opioid war. It is a street drug problem. Herion with fentynel is killing everyone not prescription pain medicine. Let's out law alcohol. Their are so many innocent people dying from drunk drivers. This is a serious problem and nothing is being done about it. Oh no way cause that is what the politicians do in Washington. Prohibition didn't work and this is prohibition as well. This is similar to the halacaust cruel and inhumane suffering or killing. How many more chronic pain sufferers do we need to loose before someone steps in and stops this.
Name: 
Claudine
Email: 
crbirish1987@gmail.com
I WILL be one of the ones who will take a bullet rather than live in the 10 pain threshold I will be FORCED to live in when they take away my fentanyl patch's, i tried EVERYTHING UNDER THE SUN before going on opioids, NOTHING TOUCHED MY PAIN EXCEPT NARCOTICS which block the pain response is the reason they work so well for people like us & ALLOW US TO AT LEAST HAVE A LIFE, I like you do not function , i am a BEDRIDDEN CRIPPLE OFF OF MY FENTANYLE OATCH'S which i have had NO PROBLEMS WITH for the last 8 years , on the patch's I HATE being a PRISONER TO THE DRUG STORE, THE SYSTEM, MY DR. & NOW, will i get my meds this month, will they murder me this month , my anxiety is so bad now i am oon anti anxiety medication to stop me from shaking so bad i feel as if i will have a stroke or heart attack EVERY DAY I AM ALIVE SINCE THEY PASSED THIS LAW TO TAKE OUR MEDS , BECAUSE I AM SO AFRAID THAT I WILL BE MURDERED BY THE GOVERNMENT NEXT MONTH , THEY WILL STOP MY LIFE SAVING MEDICATION , i HAVE TRIED TO GO OFF OF THEM BEFORE HATING BEING A PRISONER TO A MEDICATION, WELL MY BP WAS 195/118 ( STROKE TIME) WHO YES THIS IS POPULATION CONTROL = NOTHING MORE, LOOK UP agenda 21, this is agenda 21 at its finest, YES they want to MURDER ALL OLD & PEOPLE THAT NEED HELP. we are a drain on their VACATION MONEY. BUT DO LOK UP AGENDA 21 AND YOU WILL SEE THIS IS PLANNED AND TRUMP IS PART OF THE PLAN TO GET RID OF US . HE IS THE MURDERER. HE IS THE ONE SIGNING THE BILLS . PERIOD.
Name: 
Lexi
Email: 
ponylexicat@yahoo.com
Its genocide,get rid of the weak and disabled.HEIL HUTCHINSON
Name: 
Kelly Jones
Email: 
Kellyjones6238@gmail.com
I agree to All I have DEgenerative Disc disease fibromyalgia and bulging discs and my knee is horrible pain but I am afraid to have surgery bc they said no pain medicine anymore they are yanking us off them after years of not abusing them so then we suffer putting us at risk for stroke or heart attack bc of withdrawal and also not to mention now no relief at a which is terrible bc that’s no way to live life in pain I think the one that need it give it and if someone does abuse it that’s on them ! People are suffering now daily and Nobody cares I may have to consider myself disabled and I’m only 34 and love my job by with my back and pain and no relief it’s so hard to even play with my kids ! Help us fight its not fair !
Name: 
Stephanie Evans
Email: 
mommylovestris10@gmail.com
I just read your story and last week my pain management doctor hands me a piece of paper with a doctor name and contact info and tell me because of the state of Kentucky laws they are going cut my medicine back to 50mg total of opioids and that the pain I've been in for over 20 years to go to another state because of the laws and the reports from the CDC! I've had 11 surgery 5 disk removed steel plate in my neck and a fusion on my low back and I've also had a accident and broke my back and that don't count for the surgery's since 1979. I was 100 mg of fentanyl and 5 - 10mg percocet a day. I've worked over 40 years and retired and final got my disability and was looking forward to maintaining a somewhat normal life in retirement with the pain I suffer everyday 365 days a year that because of Kentucky laws and reconciliation from the CDC I have to life hurting constantly and in pain I can't handle till I die that this right? I had gone to Washington DC to represent the state of Kentucky in the construction with our lobbyists trying to make Kentucky and better place to work and live and then Kentucky has done this to all the people that have worked so hard and have been injured that live in pain daily and they want to talk about a opioid problem? This is so sad in every level of the ethics and oates that ever doctor takes! I told my that recommended me to go to another state the he took Hippocratic Oath for all of his patients with pain or without and that they have set around and did nothing to stop of this from happening that this way ridiculous! I told him to his face that if the want to talk about the drug attacks and there overdoses why don't they really get to problem drugs and take tobacco off the market because that kills more people that any other drugs! It saddens me to see how all of us in pain have to put up with this bunch of bullshit! I upset and sick that the doctors have let us all down. The drug company can pretty much do and charge anything they want to and we the people have to put up with this! I personally would be for the largest class action suit against the state of Kentucky and the doctors over our pain and suffering!
Name: 
WILLIAM WHITAKER
Email: 
twtwhitaker@gmail.com
Okay Linda, I was going to tell you some facts then you came around 360 degrees, I understand your story all to much NOW, after laws were changed , not by doctors or pharmacists , but by politicians who’s only care is about the Big Pharma ,it’s this industry that gives a lot of money to the lobbyist who in return give it to the politicians? Full circle, and all the money stays in the circle. So the President whom I like and all the other corrupted politicians taking away the rights of Americans for years, since Bush jr. and until the last (will update after Trump is gone ) STOP! You all work for us , but you really believe we work for you(we do work for them)Linda that day your Doctor said your not a addict, your not, your opiate dependent .And as well for all the addicts you did talk about, someone doesn’t become addicted be choice, its by chance, The way you were raised the things you seen or the things you went through, me I’m the one whom had a great childhood , I was 14 met a girl 20, and had 2 kids with her, and even hav 2 granddaughters and a grandson on the way, see I only met my oldest son last year after 33 years of not seeing him he's 34 and I had a daughter she's 33 now never met ,I have 2 kids that live with me my wife passed away in 2010, but I have been clean since 2012 , and today I can still feel it, I was prescribed 240 oxycodone 30 mg and 120 15 mg oxycodone's and 90 Xanax I believed my doctor, I got worse stopped taking them got better. I have a lot to say but, every other legitimate person with chronic pain your words such BS. Who are you to say who is legitimate what is chronic pain ? Not for you to decide as like the politicians , your pain id different then mine, right?
Name: 
Gary Oliver
Email: 
goli0121@gmail.com
Exactly happdned to me after 15 years taking them. Methadonehas given my life back, i lost 65 pounds feel like doing things and now i have 7 days to fnd a pain specialist. I will lose my apt, car, and income. I am single and while i am suffering no one will know when im out of food or drive me any where. I have been down the find a doctor road before and been denied meds or had the instant relief meds that made me feel like an addict. I cannot do it again. I have had a good life but its no life that i am prescribed so i will check out when its bad again. I have two daughters that would actually understand but why? Because the Govt who is not even constitutionally empowered to legislate safety has gotten involved. If you want to prevent rape kill all baby females logic is stupid
Name: 
Robert Wittbold
Email: 
rwittbold61@gmail.com
I agree with you completely especially regarding the methadone. How has something that incomprehensible happen? ( rhetorical) So a drug addict is provided a drug with virtually no questions asked...zero responsibility warranted nor repercussions even if they admitted becoming addicted to (for instance) Norco after stealing them from family members & friends , doctor shopping, lying to their doctor to get them, etc and every one of us who pay taxes are paying for not only grrrtheir drug... the cost of treating them... housing them... feeding them... and the tax insanitymlhas and even higher level of absurdity, given that the majority of them are unemployed. Those of us who are 'victims' of debilitating chronic pain are also being victimized by people... ones who choose to abuse and even more so ones in our government intent on creating a veritable straightjacket for doctors and specialists who are trying to help us grasp at a dignified degree of life. I wish for you... and anyone reading this who is in this bitterly emotional, physical, politically irrational quagmire... peace, patience and perseverance. I
Name: 
VELDA
Email: 
veldalowery@yahoo.com
I am in TOTAL AGREEMENT WITH YOU RE THE GOVERNMENT TAKING AWAY OUR PAIN PILLS! I feel like it is going to put a big decrease in annual revenue in these major pharmacutical company's in whom are tied with the government and they will back off, because let's face it there is too much money in the pharmacutical world AND THEY ARE NOT GOING TO MISS OUT!
Name: 
Vicki
Email: 
Bestof201763@yahoo.com
VICKI NOPE! The Dr who is working on a "miracle cure-all" for addiction, also updated the DSM-5 (BIBLE for Drs and INSURANCE Co) changed the definition of addiction. Anyone physically dependent on ANYTHING is an addict. She will make TONS, Insurance will pay. Currently there's Suboxone/Subutex at $8 a pill/dose & some are prescribed more than 1 a day. Same drug is $1 in Australia. Suboxone is used for pain everywhere else in the world, even used post op in opiate naive individuals, it's 20-40 times stronger than morphine in it's analgesic affect. Yet it was not advertised as that in the US. Now the DEA has put limits on the amounts of opioids causing shortages, sick people driving around looking for a pharmacy that has the med in stock (even paying cash). Suboxone & the "new miracle addiction drug" will take over. It's for ALL addictions and EVERYONE is an addict, the 80yr old with bone cancer and the recreational heroin addict are the SAME now in the eyes of the medical community. Some Drs won't accept this change, addiction and dependence are NOT the same thing, but opposites. The addict becomes more DESTRUCTIVE over time, the CPP becomes more CONSTRUCTIVE over time when taking opioids. But they have been bullied by the DEA, CDC, pharma co, media and probably will accept the change, whether they believe that definition or not. Right now, there is NO alternative being offered. NO media coverage of the Vet who blew his head off in the parking lot of the PM who took him off his meds. My friend who had MS killed herself last Christmas Day. "The slow death of compassion for the chronically ill" watch it on YT.
Name: 
Julie
Email: 
Jarileigh4@gmail.com
I was diagnosed with a degenerative disc disease when I was only 23. I had lifted something heavy and couldn't straighten up afterwards. Now 3 spinal surgeries and a hip replacementlater, I have been left with chronic sciatica down both legs and numbness and tingling in my feet. I have also been taking Methadone for pain for over 10 years and have not needed to go up on my prescription count during that time. I have tried getting on Disability, so I could quit working so much and get off the drugs, but the government decided I'd earned too much working as a CNA doing home care to qualify. So I continue working 6-7 days a week ( a CNA doesn't earn much when they do caregiving in a home.. go figure!) and the only way I can tolerate working so much is because the Methadone works. I can't straighten up after sitting for more than a few minutes and standing is equally agonizing. Now I learn that the government, in their great wisdom, is cutting my dosages in half--although I do not abuse my medication and do not drink. This is going to leave me stranded when the pain becomes acute--which it does from time to time. So what will I do? It's absolutely unfair to lump everyone who uses opioids for pain in a category as drug abusers. Yes, there is a terrible epidemic of those who do abuse their medications and get drugs from several doctors. It's terrible when they mix their drugs with alcohol and commit accidental suicide ( my mother was a alcoholic who did just that). But I'm not one of those people. I am a responsible working person who is in constant, agonizing pain who needs pain medication in order to work. These new restrictions are going to cause people like me to go to the streets to procure relief for their pain, or to start drinking. There will be more intentional suicides by people who simply can't live with the chronic pain. We shouldn't be punished because others have abused their medications. Each person needs to be treated with respect as an individual.
Name: 
Lilli Gross
Email: 
lillimili707@gmail.com
Methadone changed my life too. The thing I loved the most is you don’t grow a tolerance to it. My doc is also cutting mine in half. So all the schooling I did was for nothing. There has to be something we can do, we have a voice. It’s time we used it.
Name: 
Holly Bell
Email: 
Hollybell1969@hotmail.com
Me too! 30 plus years of Methadone, never high, never out of it. Had a life. Now I live in constant pain and I don't know how long I can do it. I am single and have no one. I can afford to drink! How many people have already killed themselves, only to have it labeled as an OD? I have enough saved back to end it all myself. And when I've had enough I will. But will no one be held responsible for all these deaths of chronic pain patients, who's doctors believe they need more than the law maker, who never saw them. WE NEED A CLASS ACTION LAW SUIT! What about those who were taking the drugs when the courts proclaimed them disabled? We bared our private lives to them.
Name: 
Lynne Hall
Email: 
Halllynne@gmail.com
After 10 years of different doctors trying different meds and me being treated like a guinea pig I was prescribed methadone from my primary care Dr. It was a miracle drug for me. Along with Vicodin for breakthrough pain. I have had degenerative disc disease for over 20 years and have been on the methadone 40mg and the Vicodin 20mg daily. Well that was up until about 18 months ago when my doctor cut me of cold and I had been taking 240 pills per month. I had to go to a methadone clinic to detox. Ever been to one of those? Well you can find any drug you want there. And that's exactly what I have to do these days and pray to God I don't get any bad stuff that is laced with fentanyl or something worse. How can I approach another doctor and ask for those meds. Won't happen. My primary doctor who took me off, I fired him. He told me to go to the methadone clinic which entails daily early morning visits. And the liquid veal at those clinics are not nearly as pure or clean or pharmaceutical as the prescription pills. So all my doctor did was turn me to the streets like a drug addict. So hopefully what the doctors are trying to avoid, overdoses, doesn't happen to me because now I have to hustle in the streets so I'm can have quality of life and not be in terrible pain. I'm for whatever will work to stop these opioids from being taken away from us. Thanks for listening.
Name: 
Sue Escoto
Email: 
se.luvzcatz@gmail.com
Dear Ms.Hall, I am a science journalist and would love to cover your point of view in a story about opioid legislation. If you are interested, please reach out to me at pporotsky@gmail.com All the best, Polina
Name: 
Polina Porotsky
Email: 
pporotsky@gmail.com
I agree with you 100% but what can we do about the unfairness of it all? Please keep me posted.
Name: 
Vivian P
Email: 
MzVivian3@gmail.com
Wow I am surprised to see so many of us who have been taking methadone for our pain. I also took it for over 20 years, it was literally a miracle for me. Nothing else handled the nerve pain I have the way methadone did. Then one day my pain doctor ( she was in her 70s) died suddenly of a heart attack and that is when my life began to rapidly unravel. Not one single doctor in the entire state I live in would accept me as a new patient. I literally sent out over 100 letters as well as my charts to several others. Methadone allowed me to have a life that otherwise would never have been possible over the last 20 years. If I had known the government in my country was going to cut me completely off from my meds maybe I would have traveled more. Maybe I would have crammed more experiences into the last 20 years. If I had seen this coming I would have done many things differently but sadly it is now too late. That window of opportunity has been forever closed for so many of us. I can not believe what is happening to all of us and what is worse is frankly I no longer understand why no one will stop this madness.
Name: 
Sara
Email: 
sarabryce63@gmail.com
Amen! Because the ABC, CDC & DTF across this country that have bullied there ways to the doctors and makes the doctors scared to right a prescription for pain when your dieing in pain everyday and they think that the people are going to put up with this outrageous outbreak on our family's and friends that hurt constantly! This is a no brainer to me that there should be the largest class action suit against all of these organizations including the doctors for what's going on in the United States of America about the opioid addictions! You know as far as the overdoses in my state not one person has ever OD on any of my personal medications and I've been on them for over twenty years!
Name: 
William
Email: 
twtwhitaker@gmail.com
I’ll tell you what let me hold a lighter under your foot until it starts to burn, now imagine that 24/7. Throw in 100 degree weather And I can barely lift it off the ground. Not all people who take pain meds are addicts. Some of us have no quality of life. I agree it needs regulation in certain areas but for chronic pain patients who are monitored by pain doctors need to be taken out of the equation. If you think this is just about funding then you are not paying attention. But good look going through life with your eyes closed, I just pray you never end up on this side of it because the heroine and suicide rate is about to go through the roof and the government will be at fault.
Name: 
Holly
Email: 
Hollybell1969@hotmail.com
Holly, I couldn't have said it better! People are going to turn to illegal drugs or suicide and our government will be at fault. Perhaps when their parents, grandparents n spouses begin being arrested for trying to obtain pain medications or simply give up because of loss of any quality of life, and commit suiside. they will understand what they have wrought.
Name: 
Suzanne
Email: 
Suzanne.tracy0407@gmail.com
Oh I so agree, pain patients are being treated as addict's especially those that have been on them for years and there dependent, the government is blind if they think for one minute this will take care of the drug problem,,, meth hello they make it how many Americans are doing so or traveling to Mexico to bring it back same thing with heroin they will find a way this hurts people who truly need pain meds I too understand your pain I have a nerve that travels down to my foot sometimes the pain is so bad nothing nothing helps I yes I depend on this medication to have some kind of life, they have made me feel like a addict and treated like one at times so bad to the point I said I'm done and went to Subutex, it helped some but I had to many side effects and bloody hell I didn't know it completely blocks all other opiates, what about emergency surgery ugh two months on that now at pain management I have no clue what will happen was given two 7 day scripts and waiting for a procedure on my fractured spine, what next will it be thank you go home I'm so exhausted over this I truly hate needing something for pain I truly do... Surly there is a way we all can fight this a addict will always find drugs a pain patient will suffer and honestly who really cares about us I think they just see us all as addict's... Good luck
Name: 
Just tired
Email: 
rjarrett1967@gmail.com
I agree with you completely . Thank you for saying it like it is.
Name: 
Judy
Email: 
jkaymoore52@gmail.com
I absolutely agree. I have been suffering terribly. Avoided any kind of pain med for years, anti iflamatory diets, pure essential oils, epsom salt soaks etc. ...injured again, so much pain & they treated me terrible in er as if I was psych patient. Shot me up with haldol & benadrly, totally wacked me out (mthfr), didn't touch pain & then asked me if i wanted some more... while im telling them im having bad reaction cried immediatle upon injection then was just wacked while suffering... that was month ago, suffering still. No quality of life & how do you get one in this condition? Can't take any kind of aspirin or nsaid cause was on celebrex for years, tire up stomach... I could go on, this is ridiculous...
Name: 
La
Email: 
777lavon@gmail.com
You're so right! Why are politicians so incredibly ignorant?
Name: 
Sarah
Email: 
S.justice@yahoo.com
It’s about money. Most pain patients are on disability. War on pain patients began when people started selling to supplement SSDI. That was 2008 when recession hit. Last 3 years RX drug ODs were very low. People dying from heroin and fake fentinil. If I had the ability to walk and drive & pay, i would do this or go to Mexico. Sadly, true pain patients are often too disabled to doctor shop or even go to pharmacies when out of Medication. We are dying! 2018 studies say CHRONIC PAIN CAN CAUSE DEATH! Pain CAUSES HEART DISEASE. PAIN IS TORTURE! When doctors lower dosages due to their own fear, WE ARE ACTUALLY TORTURED BECAUSE WE WERE CUT OFF OF MEDS THAT MAKE US ABLE TO LIVE. I pray that more studies come out that chronic pain KILLS. Maybe this will turn around in 2 years. If it doesn’t, I may become a statistic.
Name: 
Diane
Email: 
Charmed.griffin@gmail.com
I feel that if someone is stupid enough to OD let them. Don’t make the people who need pain medication suffer. This law is in freaking believable.
Name: 
Karen
Email: 
Karenbryant06@gmail.com
Yeah, the shots people need for bee stings r 500.00 and narcan free, really give it once, next time let them die. Sorry sounds cruel but people need it to stop there pain so they can try and go on in this life. If u wanna do it for a high, sorry you'll go to heavan.. but really proble Hell for cheating all the people that need it
Name: 
Mary Oliver
Email: 
353411.mo@gmail.com
Well said !!! Now what?
Name: 
Rosemary Palverento
Email: 
yoro1953@gmail.com
I totally agree. In fact I’m a ‘goody two shoes’ who has never had a drink or a cigarette.... I have the X-Rays and MRI’s that prove I’m in pain. I’ve considered POT—illegal RX’s, hopefully from a known source. I’ll be the 74yr old granny in hand cuffs. A pharmacist and I were talking and I told her this crap was good for ‘pushers’ business. She said it already is showing.
Name: 
Liz gregg
Email: 
Cookiegregg@icloud.com
Yup they just did it to me too in ny state. DEA came in and threatened my doctor . Said they would bring her up on 22 counts of whatever for patience filling prescriptions at 28 days instead of 30. Not even sure that's a law against her. She had to sign off right there to stop 200 + scripts and leave everyone in withdraw. No other doctors in our area will pick up patience or prescribe. Then they had the nerve to make sign a sheet saying she wasn't intimidated or bullied into this decision. Lol. I'm ticked after 7 years of treatment. Back to withdraw and loads of pain and couch.
Name: 
Chris
Email: 
slimnater@yahoo.com
Hi Chris, I am a science writer based in New York and would love to hear your side of the story. If you could tell me more about what is going on with pain medication please email me at pporotsky@gmail.com All the best, Polina
Name: 
Polina
Email: 
pporotsky@gmail.com
I know what Chris is talking about I'm a retired lawenforcement officer with crippling arthritis and before the so called problem with drugs popped up (and it didn't it's been here for years) my treatment from the doctor was helping and I could work. Now I fill so bad I can hardly go. My meds. Were cut in half because of the CDC guide lines for pain medication. This was 2 years ago,so much for keeping me comfortable the rest of my life. Seems like the politician wants to be my doctor and control my pursuit for happiness till death do us part.
Name: 
Ed Church
Email: 
churchgotit@gmail.com

Pages

Infographic: State-by-state breakdown of opioid regulations